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Austin Health Clinical School of Nursing

Dementia-friendly book clubs in care homes – RCT study of effects on wellbeing and QoL

There is reason to believe that reading in book groups as a psycho-social intervention may be powerful for improving quality of life, cognition and language in People Living With Dementia (PLWD), although this hypothesis has not been well tested in previous research. The hypothesis of this multi-centre RCT is that, participation in a dementia-friendly book group is a valid and effective psychosocial intervention to improve quality of life, cognition and language for PLWD. Samples of 10 to 12 People Living with Dementia are to be recruited from 14 Bupa Care Homes in New Zealand and 6 in Australia and they will be randomised using a computer-generated random number sequence to receive the intervention (participation in the book group) or usual activities. The intervention involves two sessions a week where each session lasts between 45-60 minutes over 7 weeks of intervention. Blinded assessment of study endpoint are conducted at baseline and follow up, involving resident QoL-AD self-report (Logsdon, Gibbons, McCurry, & Teri, 1999); Thriving of Older Persons Assessment Scale (TOPAS) (Bergland, Kirkevold, Sandman, Hosfoss & Edvardsson, 2014); Addenbrooke’s-III cognitive assessment (Noone, 2015); . The Geriatric Depression Scale Short Form (GDS –SF) (Yesavage, 1988); and The FACES Test of Theory of Mind (Baron-Cohen, Leslie & Frith, 1985).

Chief Investigator: Prof. David Edvardsson
Collaborators: University of Otago, Liverpool University, BUPA NZ/UK/AUS