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Austin Health Clinical School of Nursing

WE-THRIVE: International Common Data Elements in long-term care of older people

Recently published position statements by the International Consortium of Professional Nursing Practice in Long-term Care Homes (McGilton et al, 2015) and the International Association of Gerontology and Geriatrics Consensus Group (Rolland et al, 2014) identify critical gaps in our empirical knowledge to support high-quality, person-centered residential long-term care (LTC) from a global perspective. Key to accomplishing this agenda is an ability to develop common data elements (CDEs) that facilitate LTC data sharing and aggregation nationally and internationally, improve LTC data quality, and support common outcomes measures, among other benefits. The purpose of this project is to draw on the National Institutes of Health (NIH) CDE initiative (NIH, 2016) to identify recommended CDEs for research in LTC homes that could be implemented internationally. This research collaboration builds on a global consortium of LTC researchers, including researchers from low- and middle-income countries (LMICs), to identify fundamental measurement domains of residential LTC that are important internationally, and secondly to establish consensus on CDEs within each of those domains. To support the development of internationally comparable common data elements (CDEs) that can be used to measure critical aspects of long-term care across low, middle, and high-income countries, a consortium of researchers in medicine, nursing, behavioral and social sciences from 21 different countries have joined forces and launched the WE-THRIVE initiative. This initiative aims to develop a common data infrastructure for international use across the domains of organizational context; workforce and staffing; person-centered care; and care outcomes, as these are critical to the quality, experiences and outcomes of long-term care. Collaborative work is ongoing to generate proposed sets of CDEs for measuring the organizational context; workforce and staffing; person-centered care; and care outcomes in terms of personhood, wellbeing and quality of life for residents in long-term care.

Chief Investigator: Prof. David Edvardsson
Collaborators: Umeå University, University of North Carolina-Chapel Hill, Duke University, University of Nottingham, RTI International, The Hong Kong Polytechnic University, University of Toronto, City University of London, Maastricht University, Cardiff University, Karolinska Institute, University of Chapel Hill at Chapel Hill, São Paulo State University (UNESP), New York University, USA
Project publications to date:
  1. Corazzini KN, Anderson RA, Bowers BJ, Chu CH, Edvardsson D, Fagertun A, Gordon AL, Leung AYM, McGilton KS, Meyer JE, et al. Toward Common Data Elements for International Research in Long-term Care Homes: Advancing Person-Centered Care Journal of the American Medical Directors Association 01 Jan 2019
  2. Edvardsson et al. Advancing long-term care science through using Common Data Elements: Candidate measures for care outcomes of Personhood, Wellbeing, and Quality of Life. Gerontology and Geriatric Medicine. Accepted for publication.